DEAR ADVENTURERS.....
So now after Ronalds official first post , I (stephanie) will give you all a few generalities of what we are told to expect starting today.....after 3 days of "kidney conditioning" and prep... Ronald will start CLAG-M Chemotherapy today... it will run for 8 days with the hope that the cancer cells will respond by getting lost!!! During this time and for the weeks to follow we are told that Ronald will feel very sick and weak.... He will also start hitting that neutropenic stage where he will have no immune system yet hopefully regain his numbers in about 3 weeks or so. If all goes well to that point they will administer an "obliterating" chemotherapy (meaning so powerful that is can hopefully ZAP every left cancer cell possible) and then a day later begin his transplant! WHEW!.... and then.... we are told he will get even a bit sicker and we wait for about 2 weeks to see if the transplant took enough to start grafting!... and then... since we plan on that happening (since he has a sibling match donor, his sister) he will then have to be watched very closely to monitor for any set backs, infections or complications for a very long time...but when his numbers all come back up for at least 3-5 days they will release him to stay within 20 min of the hospital for 100 days ( those days starting with the day of his transplant)! This is because at any time he could get a fever, infection etc, that would need to be treated immediately!!...WHEW!!! As we plan on all going well even to that point.... then he will be given the ok to settle back home but still very isolated for about 3 more months as he is still monitored very carefully! What an incredible adventure ahead huh??? NOT comfortable, NOT good timing, NOT planned, maybe may appear as NOT fair right!????.... we say to that... IT DOESN'T MATTER! It is what the Lord has allowed and He is in every detail and THAT IS WHAT MATTERS!
I gave a RS Lesson 2 weeks ago and during the preparation for that lesson I felt like I wanted to play a song for them that I wasn't planning on playing since it wasn't a hymn or in the planned curriculum , it is actually comes from the movie "Joseph, King of Dreams"....but, I think now I know better why my spirit was drawn to that particular song, as the lyrics really express what we are feeling at this time.... The link with lyrics is below, if you want to just take about three and a half minutes sometime to put this a bit more into the perspective our family has chosen to place this adventure... Our challenge for ourselves and for you is to do what one of the lines of that songs encourage... to allow the Lord REACH us all personally, so He can TEACH us all personally!- We sure love you all and truly desire all the fasting and prayers that you are inspired to participate in . We plan on keeping up this blog the very best we can to keep you all informed as I know how many hearts are investing in Ronald's well being!! For now, we are well enough off as this latest unexpected adventure begins!! LET'S DO THIS TOGETHER.... AGAIN!!
All our love,
Stephanie and Family
: http://www.youtube.com/watch?v=k4c7DaAAGrQ&list=RDk4c7DaAAGrQ
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